Additional information
by Charlie Layton (Illustrator), Ami Hays (Author)
Esophageal Atresia / Tracheoesophageal Fistula is a rare birth defect. There are many questions and challenges that arise for a family. This book was written by a mother of a TEF child, to help explain to your growing EA/TEF child how they have eating and internal differences. The book will help you give them a visual to understand more clearly. It will also help you to open up the conversation about who they are, with illustrations that have been created for the child.
Author Biography
Ami Hays's first daughter, Abigail, was born in 2006 with Type C TEF, several internal defects, and a genetic disorder. What should have been a milestone, Abigail learning to eat, was a difficult challenge no one around her could relate to, including herself. As Abigail began to learn to talk she knew she had eating restrictions and needed to be safe, but it was difficult for Ami to find the words to explain to her at the young age "who she was" inside. So she wrote a book.
