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by Sharon Mercer (Author)
I wanted to share my journey as a caregiver to a loved one with brain cancer to let you know -- you are not alone. When you want to escape and you don't know how you will do even one more hour, there is help and support available. The Brain Cancer Resource Community is a true lifeline as they understand what you are facing. In addition, there are former brain cancer caregivers that have walked a similar path -- who can provide compassion, guidance, and a listening ear. And most importantly, God. He is our ever-present help.
Meeting the Challenges of Brain Cancer as a Devoted Caregiver: Travel has been part of Sharon Mercer's life since childhood. She grew up as a military brat and lived in several bases in the United States and abroad, including Kuwait, Egypt, India, and Brazil. She worked for American Express International Travel and then independent travel until her husband, Chris, was diagnosed with anaplastic astrocytoma. "It was all happening so fast. Our world shifted, and we were now learning how to navigate life with brain cancer," recalls Sharon. It was four years ago that Chris suffered two seizures that left him unable to speak. At first, the couple thought they were transient ischemic attacks or mini-strokes. Chris learned of his brain tumor after his third episode. He had several treatments, including brain surgery, while he was awake. He also enrolled in a clinical trial for an experimental treatment but was later removed from the study due to the progression of the tumor. Chris' brain tumor and treatments have affected his personality, mood, short-term memory, eyesight, and especially communication with his loved ones. Chris is currently taking three medications to manage the effects of his brain tumor. "There are so many ups and downs in this journey for Chris, yet I try to stay flexible and adjust to his needs." Sharon viewed Chris's health as a priority. She felt it was necessary to put herself second as a caregiver. "When Chris was first diagnosed with a brain tumor, I was really struggling emotionally, physically, and mentally, and because I couldn't lean on my husband for help, I knew I needed to find support."
