Additional information
by Terry Scott Cohen (Author), Barry M. Cohen (Author)
Terry Cohen, a young adult with Myotonic Dystrophy never wrote a book, and then after graduating from high school, he decided to write one dedicated to all young people with progressive disabilities and seeking a full life.
Terry writes-- he has a disability and disease inherited from his mom, and must face it every day of his life. As a teen, he struggled the most, and then it hit him-- "My disability isn't in charge of my life. I am."
It was up to Terry to make his life worthwhile, despite all his problems.
Here are just a few of the skills he writes about:
--Getting doctors to stop talking over your head and scaring you
--Finding healthcare buddies who really care about you, not just treating your disability
--Making good friends
--What to do when people don't give you a chance or expect next to nothing from you
--Having fun; enjoying your life despite your limitations
--Achieving the goals you set for yourself
--Living the life you want
