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by Kathaleen Sorensen (Author), Lorna Stuber (Editor)
I strive to create an example of all that I can be so that others in my situation can see disability for what it is. Disability does not separate me from anyone. All people are disabled, and only some are temporarily enabled. Everyone will age. Everyone will need a little help. If people understand this, then all are equal. - Thomas
Thomas is a brilliant student, an advocate for people with special needs, and a loving son and brother. He has a rare form of muscular dystrophy that over a short time leaves him completely, physically helpless. He cannot roll over, swat away flies, or feed himself, and he requires 24/7 care. But despite his daily challenges, Thomas never lets his disability get in the way. Always quick with a joke, he's eternally optimistic, finds the positive in any situation, and looks out for those around him, trying to make their day better.
In Living in the Land of the Uprights, Thomas's mother, Kathy, recounts Thomas's journey as their family faces uphill battles navigating doctor's appointments, visits to emergency rooms, advocating for funding, and fighting for equal rights for Thomas. A close-knit family, they celebrate successes and support each other through heartbreak.
In his time on earth, Thomas faces the world on his terms and wows everyone he encounters, never taking no for an answer and lobbying to move across the country to follow his dream. He and his family have no idea of the powerful impact he will have and how he will change so many lives.
When you read this book, not only will you feel the pure blissful passion of Thomas's life story, but you will also learn how to leave a legacy that will live forever as Thomas has done ... through kindness, perseverance, and humour.
