Additional information
by Leisa Wallace (Author), Emily Reading (Photographer)
Enjoy this TRUE STORY from the life of Michael Reading --a toddler born with Neonatal Marfans Syndrome.
Join Michael as he discovers the art of rhyming. From "bonk and tonk" to "haha and voila" Michael's original compositions will leave you feeling loved and inspired.
Michael was born with a rare life-threatening genetic condition called Neonatal Marfans (a separate entity from traditional marfans) which weakens all connective tissue in his body, most notably the heart, lungs, eyes, blood vessels, bones and joints.
At thirty months he'd already had three open-heart surgeries, lens removal surgery, hernia surgery, and has a team of 21 specialists. Newly discovered heart-valve failure indicates the need for a fourth open-heart surgery.
Even with all his physical struggles, Michael lives a life full of laughter and miracles.
