Additional information
by Amanda Stock (Author)
The Talking to Kids about Narcolepsy series to help adults in a child's life talk to them about what the narcoleptic in their life goes through every day. Narcolepsy is hard enough to describe to other adults; trying to describe it to children sometimes feels impossible. "Mommy's brain is broken" or "Daddy wants to play with you but he is too tired" just doesn't cut it after a while. Excessive Daytime Sleepiness robs people of time they should be spending with their families and friends. It is heartbreaking looking into a child's eyes and telling them you are too tired to play with them. The sadness that comes over their little face is gut-wrenching. It's so hard to be tired all the time. How can a narcoleptic person put it into words that Narcolepsy not only hurts the child but hurts them too? This books is written in the voice of a child. The child in the story is telling her friend about her mother's Narcolepsy. It uses simple language and examples of how Narcolepsy and Excessive Daytime Sleepiness can effect a family in everyday life. There are other aspects of Excessive Daytime Sleepiness that are not covered in this book. The author chose to focus on the issues that more directly effect the family and their emotional consequences. There are follow up questions at the end of the story to help families talk about the material in the book and begin a meaningful discussion. Narcolepsy is not like in the movies. It's not randomly falling over and snoring comically. It's not a luxury to take naps during the day when the body requires it to function. This book and the rest in the series is meant to help educate and spread awareness This book should not be used in any way as a means to diagnose Narcolepsy or Excessive Daytime Sleepiness. Diagnosis of any medical condition should only be made by a licensed physician. This book is in no way authorized, sponsored, or endorsed by The LEGO Company
Author Biography
Amanda Stock is the author and photographer of My Dad Naps Too! and the upcoming books in the Talking to Kids about Narcolepsy series. These books were written to assist adults with explaining what Narcolepsy is to a young child or other people in their life. Having a young daughter, Amanda knew this would be an obstacle she would one day face and set out to find a solution. Amanda is a wife and mother living with Narcolepsy. Like most Narcoleptics she began showing symptoms at age 15 but was not diagnosed unto age 26. Receiving that diagnosis was a huge relief. Understanding what the problem was and how to manage it has made a big difference in her life. The Talking to Kids about Narcolepsy book series has been a three year project due to the author's incredible lack of drawing skills. This book series is in no way authorized, sponsored, or endorsed by The LEGO Company but could not have completed without their amazing product.
