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by Hailey Adkisson (Author), Kelsey Diaz (Illustrator)
Did you know there are over 7,000 known rare diseases? Follow our narrator, Effie, as she uses the alphabet to explain 26 rare diseases in a scientifically accurate, but easy to understand, way.
Featured rare diseases include: Aicardi Syndrome, Baraitser Winter Syndrome, CDKL5 Deficiency Disorder, Desanto-Shinawi Syndrome, Ectodermal Dysplasia, FOXG1 Syndrome, Glycogen storage disease, Hemimegalencephaly, Infantile Bullous Pemphigoid, Joubert Syndrome, Kabuki Syndrome, Leukodystrophy/Leuden Syndrome, Moebius Syndrome, Non-ketotic hyperglycinemia, Osteogenesis Imperfecta, Prader Willi Syndrome, 22Q13- Phelan McDermid Syndrome, Russell Silver Syndrome, Sanfilippo Syndrome, Tuberous Sclerosis Complex, undiagnosed, Vein of Galen Malformation, Wolf Hirschhorn Syndrome, Xia-Gibbs Syndrome, PYROXD-1, and Zimmerman Laband syndrome.
"Rare Disease from A to Z" is the second book in the series by Simply Comply Stories. By presenting medical diagnoses and disabilities in a relatable but accurate way, Simply Complex Stories equips children (and adults) with empathy and understanding, fostering a more inclusive world. Learn more at simplycomplexstories.com or by following along on Instagram at @simplycomplexstories
